Finding Support in Your Community

The Canadian Congenital Heart Alliance (CCHA) is a non-profit organization that supports Canadians with congenital heart defects. Since 2004, the CCHA has provided education and support for pediatric and adult patients, their families, and the greater population.

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The Adult Congenital Heart Association (ACHA) was founded in 1998 to improve care and education for congenital heart patients. Their mission is to ‘improve and extend the lives of the millions born with heart defects through education, advocacy and the promotion of research’.

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I Heart Change is a web community devoted to guiding congenital heart defect patients and families transition from pediatric to adult care. After creating a free account, users can access information and resources about congenital heart defects, and useful tips to consider before and during the transition to adult care.

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