The Canadian Fontan Connection is a nationwide database that was established in 2018 as a means to study epidemiology, demographic trends, treatment and clinical outcomes in this small but growing Fontan population. Our greater objective as a whole is to attain a better overall understanding of these complex patients and ultimately improve their long term outlook. Our database is currently focused on understanding and elucidating strategies for the early detection of extra-cardiac dysfunction in Fontan patients, and we hope to ultimately use this information to implement a risk stratification tool to reduce overall morbidity and mortality in the Fontan population. 

Please complete the form below for further information, or email registry@canadianfontan.com